A Day in the Life

Gia's routine is similar to that of any three-year old.  She loves to play, read books, draw, watch movies and dress-up!  Her diet is high in fat and protein and supplemented with vitamins ADEK.  She takes digestive enzymes with each meal.  She does two breathing treatments via nebulizer each day in conjunction with 20 minute Vest treatments on a well day.  Frequency of breathing and Vest treatments increases when Gia has a lung infection.  Due to her latest diagnosis, she must also receive a variety of additional meds.  The chemo make "Gia Hurt."  She lets us know this throughout the day, everyday.  But under the circumstances she is doing very well.

She visits the CF Center, which includes a Pulmonologist, Nurse Practitioner, Nutritionalist and a Social Worker, every three months.  She also visits her oncology team on a weekly (or more) basis.  The team consists of Oncologists, Nurse Practitioners, Surgeons, Nurses, and Social Workers.